Wednesday, November 28, 2012

Happy 4th Birthday Wysdom!


It is hard to describe how glorious it is that we have reached another milestone. Wysdom has turned 4 years old. It feels like time has flown by and at the same time it feels like so much has been achieved by our little man. Wysdom arrived in a flurry after  a planned induction turned into an emergency C-Section. Below is a Wysdom is pictured below a only a few minutes after birth wearing a hand knitted cap made by his great grandmother.

Wysdom Arrives! 

So much has happened in the last four years that it is hard to describe. Here is the story of Wysdom's birth.
Wysdom and Nana A Few Days After His Birth

There have been so many things that I could share. So much has happened in the past for years. Having open heart surgery at 6 months, blenderized diets, getting his g-tube put in, removing his g tube. Endless laughter, learning to talk and dance, going to school on a bus all by himself.


You bet baby!

There have been lots of challenges along the way, but they have been totally outmatched by the endless joy and love that Wysdom has shared with so many. Wysdom loves to dance, and sing (hip hop and reggae are his favourites), he love his sister Blyss, water, reading books and school.
Wysdom at the 2012 Buddy Walk
Wishing you many more Birthdays Wysdom! Thank you to all that have been a part of Wysdom's journey for the last 4 years.

Wednesday, January 18, 2012

Great News Wysdom is G Tube Free

I can't barely believe it. Wysdom is now g tube free!!! Yeah. Wysdom got his g tube when he was almost 1 year old. Actually just a month before his 1st birthday. We were told that he would likely have it for life. However with much determination and patience we have worked hard to get it out. Wysdom has not used his g tube for almost a year. So this week we went for a consultation to see if we could get it taken out. Yes it did serve us well, however for those of you that know our story well also know that it caused us a lot of problems as well. I think we might have broken the worlds record for g tube problems and infections. One each month almost for the first year.

So when we got the hospital on Monday they decided it was time to take it out and suggested that we do it right on the spot. To be honest I was a little nervous and really not prepared. Usually everything is a bit of a fight. So when they were ready to take it out I couldn't believe it. Our options were to take it out right away, plan for sedation or to have him pass is through his bowels. Well a big red flag comes up when you mention passing it though the bowels. So that was a huge NO. The next option was to sedate him in a lab and then take it out. Well we all know for Wysdom sedation proves to be difficult. We have been turned away from sedations and omitted to the O.R or another hospital because he is such a high risk. So this was not on the top of our list, especially since they would end up putting a tube down his throat.

So the last option was to do it in the office. They say that is supposed to feel like a punch in the stomach. That it hurts, but is quick. After asking our trusted nurse who we always see what she thought we went for this route. I volunteered Julian to stay in the room with him, as I felt so nervous and a not as strong as I could have.

They told me to walk down to the elevators and back. On my way back the nurse was already out telling me that it was done and that I walked to slow. Yeah. When I went in, Wysdom gave me a little cry and then a big smile. He has been nothing but smiles since. I am sure he feels better. He is climbing on all of our furniture and I even saw him standing with no hands. Yes he is looking for it...but I keep telling him it is gone and out.

So blessed that he is eating and drinking on his own. So thankful for such a positive outcome!!!! So all of you trying to get rid or your child's g tube or ng. Keep faith that it can happen, even though they don't tell you that!!! "Beach here we come"! That is the first thing my sister said. Since we always had some much problems with the tube we have really restricted Wysdom's exposure to things that would irritate the g tube- like sands. So it looks like we can be free to go to the beach and in the water without having to worry.

Monday, November 28, 2011

Happy 3rd Birthday Wysdom

I can hardly believe that Wysdom is 3. I am so excited for this big milestone.

Three years ago I gave birth to a very small 4 pound baby who had a prenatal diagnosis of Down syndrome. My labour was an eventful one. It actually ended up being an emergency c section. Wysdom's heart could not take the stress of the contractions and after about 12 hours with lots of poking a c section was scheduled. You can read the whole story here.

Wysdom was born with a feisty cry. He was beautiful and that was all I saw. Pure beauty. I got to hold him before they whisked him away to monitor his heart, because he was born with a AVSD (heart defect). Although the road has not always been easy, especially dealing with open heart surgery, an ng tube and g tube. Having Wysdom has been one of the most rewarding things in my life.

Wysdom has blessed our lives with LOVE, LAUGHTER and such SPIRIT that I can barely describe it. Never have I regretted having him and if there is one thing that I could tell other mom's with a prenatal diagnosis is that your child is beautiful. We could not imagine our lives without Wysdom. Blyss loves her brother so much that she has made her own chocolate cake with decorations, bought a present and filled a surprise box full of balloons for her brother.

If I was asked to share one thing about our lives, I would say " when you get that prenatal diagnosis of having a child with DS the gloomy delivery of the information they give you and the sad faces are just not accurate". Very few tell you how your life will be enriched and full of love. That you will love your child unconditionally and that you will learn so many new things about yourself.

Happy Birthday my big boy!!! We love you more than words can say.

Thursday, November 10, 2011

Preschool, Buddy Walk and More.

Well it has been busy. I can't believe that I have not posted on here for so long. Even though it has been extremely busy, things are also very good. Wysdom although he happens to be sick this week( with a cold and infection) he is doing good.

Wysdom started going to preschool 2 days a week at our local centre. He seems to be adjusting really well. We stay there with him and can watch him via an observation room. He is making lots of progress, staying in the room by himself and finally getting him to sit at the snack table.:)

Right now we have not used the g tube for months and months. So we have been seen by our pedi and now going back to the specialist who put it in and setting a plan in place for getting it out. Wysdom is still eating a pureed blend of food, however we have made HUGE progress with his food.

We recently had our local Buddy Walk and the children loved it. Wysdom was a hoot. He held his little sign and waved it at the cars and people. This is so funny and really amused us because he never really holds onto anything for that long. So it was cute to see him do that.

I will try to post some new pics and video's soon. Just wanted to let you know that we are still here and okay.

Thursday, June 23, 2011

I Love this kid: Updates

As everyday goes by, I find something new and exciting about Wysdom. He is always amazing us with his great personality, eagerness and just pure love of life. I can't describe how much joy he brings to everyones life. I am so happy he is a part of our life. For those that are new to this blog you can read about our journey here.

I know I haven't been posting as much as I used to. I am going to try to keep up the posting a little bit more. Truth be told both my hubby and I are working on some projects right now that are keeping us very busy. Oh course Wysdom is also keeping busy and so is Blyss. Ha, 2 children under 5 is keeping me on my toes.

Some Updates

Standing/Stander
Today we got a new stander for Wysdom. This is his third. We really we have had one stander and a pony walker before. Now we are onto our 2nd stander which I think will be great. It takes up a lot of space but we are so happy to have it.

Today when it got set up, Wysdom went in it like a champ. He now has his orthotics and we are really trying to work on his standing and building up his muscles. He is eager to stand on some days and other's he is not so keen. When he was put in today he was so happy to be standing up. To keep him entertained we had Blyss put on the Let's Dance on. So while she danced, Wysdom started to dance. Can you believe that he has a lot of the dance moves memorized. Blyss is an avid dancer and she loves music so this is a part of our house. So Wysdom really picks up on this. However I didn't realize how much. He can shake and puts his hands up above his head and follows the directions. I so have to get this on camera the next time that he does this. The funniest thing is that I have learned that he has some strong music preferences. He definitely is more of the hip pop, reggae loving boy. He seems to really enjoy this rhythm.



EYES

We are that we are still patching his left eye. He still loves to use just his right eye, however we are trying to get him to balance using both eyes. It is a bit tricky to do patching since he can take off the eye patch. So we have to sit with him and literally hold his hands. Yup! He can take the patch off. We have tried sticky patches, cloth patches, hockey equipment on his arms to prevent him from bending and taking it off ( suggestion from clinic ). Nothing else works right now. So if you have any ideas please let us know.

G-Tube
Feeding is going well. We now don't use the tube for any feeds!!!! Yeah. He still has the g tube and we just flush it with water. So we are really happy about his progress. He is still getting a blended feed that we make up in the Vitamix. Our goal is to get the Tube OUT!!!

Talking & Sign Language
Wysdom is doing really well in communicating with us. He used a LOT of sign language and also says a good handful of words. He is so into imitating what we do. If we sneeze, so does he. If we laugh, so does he. If we dance, so does he. He so loves his sister and she loves him so much, so they are having a lot of fun together. As long as he doesn't beat her up!!!

Oxygen Test
We have had a repeat pulse ox test and that didn't go that well. I am not sure about the results yet, but he would not keep it on for the 4 hours needed. I seriously got 1 and yes I repeat 1 solid hour done. The rest was hit and miss. The first one didn't have enough time of storing his stats. This attempt, we had less. ugh....

Otherwise all is good. We are really busy. However that has been the norm for us for the last couple of years. Hope to take a video soon and let you see my cutie pie!!!

Tuesday, May 3, 2011

Oxygen Monitor: Not Fun

Well to all of you who have your child where an oxygen monitor at night...I don't know how you do it? We had to have Wysdom wear one last night and that was an ordeal to say the least. For the first two hours it was okay. The monitor did not make any noise and just lit up. Since we were just doing this for a test night, I didn't want to touch and change anything.

However then Wysdom started to get fussy and kind of wake up. Once he saw and felt that on his finger he threw if off, pulled it off, shook it off. You name it. We were only trying to get 4 hours for the study. But that was pretty difficult to do. I could not image having to do this every night, unless there is some other type of device.

We handed the box in today and are just waiting for the results. I think that we will have a sleep study in the future. I am actually thinking that his issue might be some sleep apnea and reflux.

What are your nights like? Do you experience trouble with the nights? How does it effect your schedule?

Thursday, April 28, 2011

FOODMATTERS DVD Giveaway!!! Enter Today

If you are interested in food and your health then this is a documentary that you will want to see.



FOODMATTERS breaks down what is happening in our society today with our food and illness and how they are connected. Every wonder if what you are eating or feeding your family is safe? FOODMATTERS takes a look at all of these questions. Top health experts in their field talk on camera about these key issues.

For your chance to win a free copy of this groundbreaking DVD stop by Blyssful Health (my other blog) and enter your name.

Wednesday, April 20, 2011

Cardiology Follow Up and Eye Appointment

Well we have had an extremely busy last couple of days. Today we went to our children's hospital about an hour away. Wysdom first had an eye appointment. His eyes cross and shake, so we have been doing patching for a long time. We switch eyes depending on how his eyes are responding. Normally we patch for about 45 minutes and that pretty much is not fun, because Wysdom can pull it off in a second and he does so. So we went last month to check his eyes, but he would not cooperate so we came home. So this time he still did not want to cooperate and what I mean by that is that he won't open his eyes, and he is actually strong enough to keep them closed.

Needles to say they had to use some equipment to keep his eye lids open. Can I just say that I DID NOT LOVE THIS AND EITHER DID WYSDOM. If you have ever had this done to your child, I am sure you agree with me. It was hard for me to watch. I mean it only took a short time, but I couldn't handle it so well. Shed a few tears, maybe more than a few in the office. Verdict is that we no have to patch his eyes for a total of.....4 HOURS. Ha. I will let you know how that goes. I am going to have to figure out some contraption for his patch. We are trying to get his brain to use both eyes the same amount of time. Right now he uses his right eye and his left eye is weak. When they are balanced the we can go to surgery to try and fix the crossing.


Next....

We went to our Cardiologist appointment. We had an echo done at Sick Kid's about a month ago. We also had one done today too. This was a big appointment and I am glad to say that all has stayed the same. This is the best news ever!!! He still has a leak both on the right and left side of his heart and some narrowing on the right that they will watch. However all is okay now, We just have to do a "holter" not sure it that is the correct spelling. The contraption that they wear to monitor their heart beat. Once we do this we are not looking to go back for a YEAR!!!! I can not tell you that I am so relieved.

We still have a sleep study to think about as Wysdom is not sleeping well. So it might be a lung issue, or ENT issue.
I will keep you posted. All in all it was a busy day and Wysdom did his best. He was cried for a good portion of the day, and was happy to come home.

Next stop. Last RSV shot of the season in the morning. Oh boy he is not going to be loving this.

Sunday, April 17, 2011

Look at this handsome face!

I love this little face. I could just hug him up all day. I will show some more pictures of Wysdom and some new ones of Blyss as well. Things are going well. We got a new Pedi this week (thanks to my mother's group for supporting me and giving me a little pep talk in this area) My new Pedi seems great and she did a very detailed history of Wysdom's history this week.



We are pretty busy as per our usual schedule. This week coming up we go to an eye appointment and a (Yikes) cardiology appointment. Of course I am nervous for the cardiology appointment as we get the results of Wysdom's echo. For those of you that are new to this blog, Wysdom has open heart surgery at 6 months of age for an AVSD. He has been doing awesome since with some minor leaks in his heart. We are keeping our fingers crossed that we will have good news on Tuesday. That things have stayed the same or got better would be great news.

As per the feeding Wysdom is doing well taking our blended puree that we make at home. We are going to start with textures and reintroduce it to him as well as flavours. Hoping that he enjoys these new elements into his meal time. We are barely using the g tube and we are hoping to get it removed in the future.



Hope all is well with everyone. Sorry this post is short...but I am up late and very tired.

Monday, April 4, 2011

He's All About Communicating.

Wysdom was described recently as being "communicator". He his signing, saying some words and just all around telling us what he wants. He is using lots of non verbal cues to communicate with us. We go to a lot of different therapy appointments and one of the great things for me is that they can help me keep on track. They help us use two way communication. So many time I just want to do things for Wysdom, or say what he wants, or I am in a rush and move around to quickly. I have learned that if I am always doing this how am I helping him? If I take my time and WAIT I can learn and lot about him and see what he wants.

So one of our therapist can over about 2 weeks ago and asked about him communicating. I talked about how he can do a lot of signs and how we are so impressed with this. She gave me some great examples of how to get to use more of the functional signs like help and open and then we set up the correct environment for a dialogue to take place. Low and behold Wysdom is bossing me around these days. (ha ha). He picked up on this right away and within a day was commanding for things to be opened or that he needs help and he is doing it with some flare. Not just a meek open, but I imagine his sign communicating OPENNNNN!

We truly are so proud of how he is doing. To be honest I don't compare him to other's and their speaking abilities. I am not sure why I have never done this, but it doesn't interest me right now. It may in the future, but now I am just happy with our little guy and all that he is doing, especially in light of all that he has been through.

We are still using Signing Time Products daily to increase his signing and ability to communicate. I wish I could remember the name of the mom that introduced me to the company. I believe in signing so much that I have started teaching my own groups. Oh yes one of my favourite signs that Wysdom does is SCARED !!!!!!! I will have to get that on video. I just love it

Other updates are that we went to an eye appointment last week that took the entire day and Wysdom did not cooperate. Meaning that when the Opthamologist tried to look in his eyes, he closed them as tightly as he could. Sooooo (can you hear the sigh) we go back in 2 weeks. In the morning we go to a physical therapy and occupational therapy. Then in the afternoon we pick up his new orthotics. Otherwise things are going well. Just really busy.

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Have a great week.

Sunday, March 27, 2011

Wysdom and a Bottle of Rum

Yup you read that correctly. Need I say more. Wysdom is becoming interested in moving around and touching new things. He is still doing the bum scoot thing and the commando crawl, but he is expanding his reach and activities. So I am not sure if this happened today or yesterday because the days seem to blend together. Whenever it happened it provided us with a good old laugh.

My husband and I watch Wysdom really well. This mostly has to do with his medical history and his feeding tube that he loves to play with. As well he has some pretty sharp teeth and he likes to bite things like computer wires, his sister and paper. Truly he has always been monitored really well since birth and we have just continued with this as he is getting older. So... imagine my surprise when I walked into our living room and he was looking in a china cabinet and had a large bottle of "rum" sitting on the floor in the middle of his legs. It was unopened and a plastic bottle so no immediate need for screams. As most of you know my parents passed away last year. So I inherited some of their furniture which included the cabinet. We also inherited some of my dad's collection from his bar. So I figured to be sentimental that I would put everything in the same cabinet in the exact same spot that my dad kept it. We really don't drink a lot these days. We haven't opened the cabinet in a while but I think that night I felt like a glass of wine.

I have seen Wysdom tug on some of the doors. Especially the door that keep all of our video's. He has never attempted the other doors until now. So you can imagine my face when I walked into our living room. My husband was there with him, but probably thought he was playing with his toys. Maybe he saw Julian take out a bottle of wine and thought "oh this looks like fun, or new".

The good news is that he is learning to explore his surroundings and is using his fine motor skills. Yeah. I am all for that of course. However we know need to figure out how to make this cabinet child proof....of ya and almost everything else in the house.

Hope this gives you a good laugh. I was so in shock that I didn't get to take a photo.

We have been crazy busy with lots of therapy appointments that I will post about later in the week. I just wanted to share this story.

Have a great week everyone.

Saturday, March 19, 2011

2 Baths In a Row Mommy?

Wysdom is keeping us really busy. If I had a camera and took a video of the last couple of days....I am positive I could win money from somewhere. Julian is usually out and then Wysdom has a big accident in his diaper. It is not really an accident as he is not potty trained yet. The accident part is that it is a mess. I am home alone with Wysdom. Then I hear Julian and Blyss outside getting ready to come in and I scream...Come Help me. Then it becomes a whole family affair. Blyss gets the bags, Julian holds his hands and legs sometimes. I try to clean him up and then we just run out of hands.....

That's how bad it is? Do your little ones have any accidents. Love to hear some of your funny moments with your little ones.

Also check out the post below for your chance to win a cookbook or health book. You have until Monday to enter.

Thursday, March 17, 2011

Book Giveaway: Get Healthy With Us!

To all my DS mom's I would love for your to come over to my food blog and enter our contest. I have a selection of 4 books for the winner to choose from. The only thing is that you will have to comment over at Blyssful Health. That will help me keep track of everyone.

These books focus on healthy eating, juicing, and eating to be well. Please stop by and enter. Blyssful Health

Wysdom is well. Sleeping now. We have had a busy week with an echo, and fitting for orthotics. Will post more on my little handsome man later. For all of you that commented on the echo post, I left a brief comment there on how the day went. Thanks for the support.

Sunday, March 13, 2011

It's Echo Time Again

Well I am not going to lie. I am a little bit nervous about our appointment this week. We are heading out of town to get an echo done for Wysdom. We will leave at 7am to make it there for a 9:OOam appointment.

I am hoping for some good results. I feel like Wysdom is doing well. There was some concern at our last cardio meeting. Nothing urgent but just something to think about in the future. So we are going for the echo to make sure all is well. They will put him to sleep which is usually fine. We usually go to a smaller hospital, however they will not do an echo on Wysdom without putting him totally under with a breathing tube. He is seen as such a risk that they don't want to do it any other way.

So off we go to a larger hospital where they use a liquid to sedate him. This is much easier as it is just put in his g tube and therefore no tubes in his mouth. They did ask if I thought he would tolerate a different drug that would keep him awake, but just more relaxed. My answer was "Nope..he won't go for that" Really Wysdom has had a lot done and I think he would not allow anyone to touch him even if he was made more relaxed. Ideally this would be the better way. So we will see how it goes.

I did learn that after the age of 3 they do not put children to sleep so he will eventually have to get used to being touched as after 3 years of age he will have to be awake. For all of you that have never seen an echo done it is a painless procedure that is like an ultrasound but over the heart. It doesn't take very long...but to my little man it is awful. He doesn't tolerate a lot of things, and I can't blame him.

Then on Tuesday we go to make casts for his feet for orthotics. I am excited to get this done as I hope it will help Wysdom out. Oh yes and the good news is that he seems to like the Pony Walker. He has figured out how to move forward and is enjoying it so far. He does go on his tippy toes though. He is just so THRILLED to be able to move around. So we are really excited about this.

I will have to post a video of him in it as he dances to Hannah Montana or Justin Bieber. These happen to be my daughter's favorites, so Wysdom has no choice but to love them too.

Ps. Stay tuned for a contest on my food blog this week. If you want to get healthy or try some new recipes you will have a chance to win a great book.

Sunday, March 6, 2011

Pictures of Pony Walker & More

Last post I asked if anyone had used a Pony Walker to help their child learn to walk as Wysdom is still not really interested in standing. I got a couple of comments asking for a picture of it. So here it is plus a few other pics of Wysdom.

So here is the pony walker.

Wysdom is sleeping now so that is why he is missing. He gets to sit on a little cushion and the idea is that he uses his feet to move the walker and then can become more mobile.

We have only had him in it a few times. He doesn't seem to mind it, however not sure if it will help or not. It is so new that we will keep trying. We do have an appointment for casting for his new SMO's in two weeks.

This is Blyss and Wysdom playing with each other. This position often ends up in someone crying from getting hit in the head by Wysdom head.


This is my little sweetie eating wipes. Yup he is loving it and was even doing it more for the camera. I guess I shouldn't really take his picture while he is doing this. The cute thing is that he will look around and pretend he is doing something and the second you walk away....Yummm Wipes.


Lastly, this is a picture of Quinoa Stuffed Peppers from my foodie blog. Come sign up over there for info on recipes, health tips and fun contests.

We have lots coming up in the next few weeks with Wysdom. An eye appointment, physio, however the biggest and scariest is his echo for his heart on March 14th. Will keep you posted. Have a great week everyone.

Thursday, March 3, 2011

Pony Walker/Stander?

We now have a pony stander or walker. Not sure which is the correct name. Anyways we have this on loan to try to help Wysdom stand. He is not really interested or maybe not comfortable standing. We had a traditional stander for a while but that didn't seem to do it for us. We try on our own by holding him and that works a bit.

So now we have a pony walker. He sit's in this chair type of thing and get's strapped in and then he is supposed to use his legs and move himself like a bike. So far he is interested in chewing the foam at the top where the tray is located.

Just wondering if any of you have used this little apparatice before and how it worked out for you? As I mentioned before we are getting SMO's for Wysdom's shoes and this well be done in about a week or so. I am really hoping that they help give him some stability. I would love to have him walking around.

I do realize that he does things so totally in his own time, but would love to get him off the floor and walking around. Especially since he is wearing a cute hockey jersey today!:)

Love to hear what worked for you and your little ones with walking and motivation. I figure that Wysdom has pretty low tone so it is really hard for him.

Friday, February 25, 2011

Two show feature DS issues in their plots this evening.

Did anyone happen to catch Grey's Anatomy or Private Practice this evening. Both episodes had Down syndrome as part of their content. Thursday night is my tv night and low and behold the topic was brought up.

Grey's brought up the topic in the form of prenatal testing.. Two doctor's shared different opinions on this. The one that seemed to be expressed a little more was that a special needs child may have a lot of medical issues. Then they brought in the option of doing a amnio and the risks of it.

The second show which followed and is by the same producer focused more on a teenage girl with Ds who is pregnant. Her mother did not want her daughter to have the child and took her daughter for an abortion. The doctors on this show questioned what to do in this circumstance and if the girl with DS could help parent the child. Ultimately the mother of the girl with DS made the choice for her daughter without telling her that she was going for an abortion.

Just wondering if anyone watched these and what your thoughts are on this? ( Hope my description is clear. I am a little tired.)

I think it is good to see more shows talking about DS on TV. It does bring the topic of genetic testing to the forefront and hopefully makes people thing. However I wished they took a stronger role that it is okay to have a child with DS.

Or some type of information such as a link to a Down Syndrome Association online that is connected to their show. Some parents right now trying to make the decision about their child might have been watching. I was proud and happy that the girl with DS did a good acting job. The more exposure to DS the more we can talk about it and not try to ignore the topic of prenatal testing and termination rates.

What are your thought.

Wednesday, February 23, 2011

Documentary of Monica and David

Last week I was finally able to watch the documentary called Monica and David which shares the story of 2 adults who fall in love and get married. They also happen to have Down Syndrome.

I am sure most of you have seen the documentary already. However I just wanted to see what your thoughts about this documentary? Did you enjoy it? Was it hard to watch for any of you? Was there something that you didn't like about it?

I personally found it easy to watch. I know some people have a hard time envisioning what their child with Down syndrome will be like when they grow up. I am not one of them. Maybe because we are so busy, I tend to stay in the present or maybe a year or two ahead, but that is about it.

I love the relationship between Monica and David and I loved how they showed them doing their daily routine, taking care of each other, and loving each other. the only thing that maybe bothered me for a second was that the mother was so protective. I felt at one point that she didn't want her child to interact with the public as much. Did any of you pick up on that at all?

Overall I would recommend it to parents of a child with DS, but also for family and friends in our worlds. Maybe one day the medical field and prenatal counselling departments can offer this as a resource for parents hearing about their child's diagnosis. Instead of all the negative information and they could one day say... "Here your copy of a Love Story to view"

Tuesday, February 22, 2011

Does your child hate the thermometer?


Okay really does your child hate getting their temp taken? Do they go into hysterics when you try to it. I am wondering if you have any neat little tricks that work for you? I am guessing because Wysdom has had a lot of stuff done to him in his short sweet life, that he doesn't care for anything that resembles his past stays at the hospital.

We are in the middle of an illness marathon shall we say. I think that I must have jinxed myself about a month or so ago. I was so proud that we were not sick and doing well. Since Blyss started school this year that was my greatest fear. Although I don't think I have the energy to home school like some of you out there. The thought of illness and germs paired with Wysdom gives me chills.

So when I went and said that comment about being so lucky....low and behold it started. First Wysdom had diarrhea for about a week(talked about this on an earlier blog). Then he got better. Blyss then got diarrhea and was throwing up a day after he finished. Since it presented differently we thought 2 different things so we separated them and masked up(wearing masks was something we learned from early on and use it in the worst circumstances). Then it took a week and she got better. Then I sent her to school and within a day and a half she had something else. A high fever and a cough. This is still going on, well at least the cough.

Then low and behold two days ago Wysdom gets a fever, a g tube infection (possibly) and a cough. So they are still somewhat separated and my husband and I are in survival mode a bit. I seriously have been in the house a lot lately and going a little stir crazy. Of course things could be worse, we all know that. But come on already!!!

This morning in attempts to make Blyss better I made some fresh orange juice and in attempts to make me feel better some kale, green apple, celery juice. You can check it out here on my other blog which I should have called Midnight or late night blogger.:)

Ps. I am still so grateful...just needed to vent as I sit up for about the 10th or maybe even 12th night watching over both of my babies until I wake dear hubby up at 3:00am. Actually I can get a whole lot done at this time it just doesn't help with my
resistance the the morning.

Wednesday, February 16, 2011

Just Grateful.



This is a cake that Blyss made, iced and decorated today. We made this cake late as both Blyss and Wysdom were sick last week. So we delayed her Valentine's Day activities. She was so proud to do this and was thrilled when I said that I would post it on the blog for her. Oh yes...a belated Valentine's Day to everyone of you.

Then there is Wysdom spreading the love and cheer as usual. Just loving this face.



I am tired from this last week of sickness in our house...but just so grateful for our family. Tonight I worked with Wysdom on trying to stand. I found an interesting way....to put him in front of the T.V. and get him to try to touch the screen while Baby Signing Time is on. For the first time today while I held him up...I saw him move his foot. I can not tell you how great of a moment that was. And oh how he laughed and laughed and laughed. He laughed so hard for a moment I thought he wouldn't be able to stop.

Just Grateful.