Okay here it is. I might as well post about my little Wysdom's pressure spot. It is why I take mostly side profile pictures these days. I am going to share my story so that I can just post pictures of Wysdom with the scar on his head and not have to feel bad about it anymore. And so I don't have to cut his forehead of when I take pictures.
This pressure spot occurred while we were in the hospital for Wysdom's OHS in May. He had trouble coming of the breathing tube, so they used an alternative to cpap mask for his breathing. The mask was tight and heavy and ended up creating a pretty large pressure sore on his forehead. They covered it with some tegaderm and a day later it had developed into a whole the size of a quarter or larger on his head. We are currently being followed by the Plastic Surgeon at Sick Kid's Hospital where he had his initial OHS. Monday they took a look at it and thought that it was healing quite well. It has taken almost 2 months to close. Now that it has closed we are to wait a week or two and then start to massage the area with oil to help prevent it from raising. It will take 18 months to heal and we are not to allow any sun on the scar area.
I don't know if I will stop being angry with myself over this pressure spot. I regret not speaking up louder about this and getting them to figure something out. I did complain, but ultimately it was my husband who created an alternative way for Wysdom to wear the mask in the last couple of days, that I am sure prevented more damage. This pressure spot also happened during the time that he caught pneumonia and also the day that they moved him into a make shift room. While advocating for a different room and dealing with the pneumonia the pressure spot got ignored somewhat and I still feel bad about it.
I really don't see it when I look at him everyday. However I do notice it when I introduce Wysdom to someone, or when I look at pictures that I have taken. I find that I end up taking a lot of side profile pictures or cut part of his forehead off. If I take the picture head on I try to retouch the pictures afterwards, or just don't end up sharing them. Truly I am telling this story and sharing this picture so that I can start to post more pictures without having to worry about how people perceive his forehead. And so that I can start to forgive myself about this too. So here he is with his scar and all. Also I wanted to share this story so other's who go for heart surgery can avoid this same mistake if possible.
