My poor blog. I have neglected it and also all of my fellow bloggers. I haven't been able to catch up with everyone as of yet. Hope everyone had a Happy New Year!!
Things are really hectic and busy on this end. My sister and I are spending our free time visiting my mom and trying to make her healthy things to eat. She is not eating much so we are trying lot of things like fresh juices, soups and salads. In the last couple of days she has felt a bit better and had a little more energy. She seems a little more hopeful these last couple of days. It has been a whirlwind, but we are hanging on.
On the Wysdom front we are dealing with a g tube infection of some sort. Over the last week I thought he was teething, which he still probably is. He kept crying and putting his fingers in his mouth. Finally Julain and I figured out that something else was wrong. We saw a little red discharge on his g tube site. We ended up going to the hospital for a RSV shot this week. We asked them to check it out and they said it was fine. However the next day we could see more discharge and he was in a lot of pain.(Didn't help that Blyss fell on the g tube with her knee..ouch). Anyways we called another hospital the one where he got the g tube and our doctor is off until Monday, so the on call pedi faxed our pharmacy a prescription. So he is now on some meds for 10 days. We are really not sure what is going on and are going to try to see our doctor this week. Otherwise he is doing well and still packing on the pounds. We are switching his formula right now giving him half of his Good Start and adding a second stage formula that is being mixed in. We are hoping that this will help with his reflux and that the enticing vanilla flavour will encourage him to bottle. We are currently trying to bottle him and he is taking about 10mls which is pretty amazing since he didn't bottle for a year.
This week we start back into our routine of appointments with a hearing appointment, feeding team and hopefully a g tube appointment. Will keep you posted on how everything is going. Thanks for all the continued support for my mom. I may not get to post as often as I would like. Most of my time right now is being devoted to helping my mom and researching alternatives that can help support her. I am going to try to at least post once every week to keep you all informed on what Wysdom is up to. He is doing a lot of fun stuff like interacting really well with his sister and making some crazy noises and faces.
5 comments:
How crazy, a g-tube infection. My surgeon said they are rare because your stomach is not sterile. He said he's seen some nasty g-tube sites that still weren't infected. Of course our kiddo's catch everything, right!? Hopefully he feels better soon.
Hope Wysdom's belly's on the mend, soon! If it's any consolation, I've been neglecting my blog READING, so no harm done! :0)
We HAVE been thinking of you all and sending prayers for your mom to feel buoyed by blessings each and every day. I'm sure you and your sweet family have been delivering most of them...
Hugs to each of you...
i still have you and your family in my prayers. wishing you a new year filled with blessings.
{{{{HUGS WYSDOM}}}}}} Give your Mom some {{{HUGS}}}} too :)
Hey Sasha if it's any consolation I have been extremely busy myself and have neglected my blog as well. I will keep your family in my prayers. So sorry to hear about Wysdom's g-tube site. I know Liliana's site has looked pretty disgusting and they continually tell me that there is no infection and everything is ok. We are currently using a cortisone cream from the pharmacy to try and clear things up. Good luck and I hope to things get better soon. ((HUGS))
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