Yup emergency trip to the hospital but we are home now.
We never ever have a dull moment. For the last week Wysdom has been dealing with some tenderness around his g tube and a little discharge. Nothing gross, but something that caused him some mild discomfort. Last night I played with him and had him practice his sitting by putting him on the floor between my legs with his back against my tummy. He played like this for at least 30 minutes or more and maybe had a few seconds of discomfort. I really wasn't pushing him to do it or anything and he seemed to be having fun. What a mistake that was. When I went to change his diaper after, I couldn't believe my eye. There was a big pouch of skin puffed up around the g tube. It was all red and it looked so swollen. Julian and I immediately discussed our options. Go to our local hospital emergency? Not a good idea. Call the hospital where the g tube was put in and where most of our doctors are seemed to be our best option. We contacted the on call pediatric surgeon and explained the situation. The surgeon advised us to wait and come in the morning for 9am to see someone in the Pediatric Clinic as the emergency staff may not know as much about the g tube as the clinic. So after much talk and lots of tears on my part, that is what we decided to do. We almost went to emergency because I didn't want to wait because it looked awful. However Julian talked me into waiting.
In the morning we rushed off to the hospital. Once we got there the game plan was quickly made. They were going to freeze his skin around the g tube and then cut it open to let the puss that had gathered, out. LET ME JUST SAY THAT MY STOMACH TURNED. THIS IS NOT FOR THE WEAK. My poor little man. As if he needs more procedures done to him. I was pretty upset at this because the g tube infections like this are pretty rare. We are so careful with it and wash our hands and sterilize before we go near the tube. Keep in mind this is already our second issue with the g tube since October.Julian being the trooper that he is was nominated by ME to stay with Wysdom, while I entertained Blyss in the hospital for an hour and a half. I just didn't think that I could handle being there today when they cut his skin open. I know I have gone through worse (heart surgery), but just couldn't do it. So when I got back in Wysdom was doing the cry that you do when you are really upset and are trying to catch your breath. He is SUCH A FIGHTER AND TROOPER!! HIS SPIRIT CAN NOT BE BROKEN.
The good news in all of this is that we didn't have to be admitted to the hospital. I had nightmares of this. Also he didn't have to have the tube removed which was another fear of mine. The way it looked with the swelling was very lopsided so we thought it was a structural issue. I am also so thankful for the doctors and my husband too. We are at home now and Wysdom is doing okay. He is fussy and getting his doses of Tempera(oh how I have come to love tempera). Right now he is sleeping peacefully. If all goes well we will go back in a week for a check up. We were supposed to go to the same hospital tomorrow for an ENT appointment but since it is an hour away I cancelled and will rebook it when he is feeling better.
Last night I had to pull out the books that I used to support me when I was in the hospital for Wysdom's heart surgery.It just all is too much, everything happening all at once. I already had a meltdown at my mom's earlier in the day. So I took a peek at these books on spirituality and hard times and read those before bed. Here is a quote that got me through the night. "Sorrow looks back, worry looks around, faith looks up" Anonymous . I think I will start to read some of these books again everyday like I used to do many years ago and hope that they give me some strength.