It's Echo Time Again

Well I am not going to lie. I am a little bit nervous about our appointment this week. We are heading out of town to get an echo done for Wysdom. We will leave at 7am to make it there for a 9:OOam appointment.

I am hoping for some good results. I feel like Wysdom is doing well. There was some concern at our last cardio meeting. Nothing urgent but just something to think about in the future. So we are going for the echo to make sure all is well. They will put him to sleep which is usually fine. We usually go to a smaller hospital, however they will not do an echo on Wysdom without putting him totally under with a breathing tube. He is seen as such a risk that they don't want to do it any other way.

So off we go to a larger hospital where they use a liquid to sedate him. This is much easier as it is just put in his g tube and therefore no tubes in his mouth. They did ask if I thought he would tolerate a different drug that would keep him awake, but just more relaxed. My answer was "Nope..he won't go for that" Really Wysdom has had a lot done and I think he would not allow anyone to touch him even if he was made more relaxed. Ideally this would be the better way. So we will see how it goes.

I did learn that after the age of 3 they do not put children to sleep so he will eventually have to get used to being touched as after 3 years of age he will have to be awake. For all of you that have never seen an echo done it is a painless procedure that is like an ultrasound but over the heart. It doesn't take very long...but to my little man it is awful. He doesn't tolerate a lot of things, and I can't blame him.

Then on Tuesday we go to make casts for his feet for orthotics. I am excited to get this done as I hope it will help Wysdom out. Oh yes and the good news is that he seems to like the Pony Walker. He has figured out how to move forward and is enjoying it so far. He does go on his tippy toes though. He is just so THRILLED to be able to move around. So we are really excited about this.

I will have to post a video of him in it as he dances to Hannah Montana or Justin Bieber. These happen to be my daughter's favorites, so Wysdom has no choice but to love them too.

Ps. Stay tuned for a contest on my food blog this week. If you want to get healthy or try some new recipes you will have a chance to win a great book.

Pictures of Pony Walker & More

Last post I asked if anyone had used a Pony Walker to help their child learn to walk as Wysdom is still not really interested in standing. I got a couple of comments asking for a picture of it. So here it is plus a few other pics of Wysdom.

So here is the pony walker.

Wysdom is sleeping now so that is why he is missing. He gets to sit on a little cushion and the idea is that he uses his feet to move the walker and then can become more mobile.

We have only had him in it a few times. He doesn't seem to mind it, however not sure if it will help or not. It is so new that we will keep trying. We do have an appointment for casting for his new SMO's in two weeks.

This is Blyss and Wysdom playing with each other. This position often ends up in someone crying from getting hit in the head by Wysdom head.


This is my little sweetie eating wipes. Yup he is loving it and was even doing it more for the camera. I guess I shouldn't really take his picture while he is doing this. The cute thing is that he will look around and pretend he is doing something and the second you walk away....Yummm Wipes.


Lastly, this is a picture of Quinoa Stuffed Peppers from my foodie blog. Come sign up over there for info on recipes, health tips and fun contests.

We have lots coming up in the next few weeks with Wysdom. An eye appointment, physio, however the biggest and scariest is his echo for his heart on March 14th. Will keep you posted. Have a great week everyone.