tag:blogger.com,1999:blog-3071347216867881592.comments2023-10-25T08:34:20.928-04:00THE WONDER OF WYSDOMUnknownnoreply@blogger.comBlogger928125tag:blogger.com,1999:blog-3071347216867881592.post-69760522863262079082012-01-23T01:11:11.777-05:002012-01-23T01:11:11.777-05:00Wow!! Congratulations!!Wow!! Congratulations!!Cindyhttps://www.blogger.com/profile/13760897671143549963noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-9718325702435312102012-01-20T12:14:07.277-05:002012-01-20T12:14:07.277-05:00Yay Wysdom! So glad to hear you are tube free.Yay Wysdom! So glad to hear you are tube free.ds.mamahttps://www.blogger.com/profile/08631570001473985562noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-37952788653786761122012-01-18T18:24:37.649-05:002012-01-18T18:24:37.649-05:00Thank you! Yes we are thrilled. There is always ho...Thank you! Yes we are thrilled. There is always hope for you. Yes a huge weight has been lifted. For us doing the blenderized diet was the way to go. He started eating the blenderized feeds and over time just got quicker and quicker at it. <br /><br />We still have lots to learn, however we are truly happy that it is out. Wysdom keeps looking for it, however I know he feels better already. If you have any questions on the blenderized diet send me an email. sasha@blyssfulhealth.comSasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-82151403219935961742012-01-18T12:47:51.701-05:002012-01-18T12:47:51.701-05:00Oh so jealous!! We are still on full g-tube feeds....Oh so jealous!! We are still on full g-tube feeds. UGGG!!! I can't wait. That has got to be a monster lifted off your shoulders. Congrats to Wisdom!!Alaina and Kylehttps://www.blogger.com/profile/16414540226285673632noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-60046576156440111192012-01-18T08:49:09.146-05:002012-01-18T08:49:09.146-05:00You give me hope. Gread job Wysdom!You give me hope. Gread job Wysdom!Gabriel and Alyssahttps://www.blogger.com/profile/09531553431946122385noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-16151234036866582232011-12-27T11:32:04.071-05:002011-12-27T11:32:04.071-05:00Thank you so much for your comment. I will try the...Thank you so much for your comment. I will try the socks. However Wysdom is pretty active and strong and I am not sure he will keep it on. In his first year he had to wear socks because he had an ng tube. So now anything to do with sock on his hands he hates. I am going to check that website out and will let you know how it goes. <br /><br />Right now books seem to be the biggest distractor for him. However he always has to have someone with him:)Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-20082226562756691832011-12-25T13:26:30.647-05:002011-12-25T13:26:30.647-05:00try putting stockings on wysdoms hands when you pa...try putting stockings on wysdoms hands when you patch (check out pudgeandzippy.blogspot.com) she is patching biggie right now and puts socks on his hands, gives him a sippy cup and puts on mickey mouse club.if he is adept at getting the socks off his hands, you might need to make or buy this one thing i saw on (stclairadoption.blogspot.com) that they were using on Lily because she had orphanage behaviors and was scratching behind her ears.<br /><br />it was a piece of material that wrapped around her back like a shrug, and had sleeves with material over the ends to cover the hands. lily doesn't need it anymore, but it definitely looked like it made it impossible to remove on her own.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-22662917667641468822011-12-16T02:10:36.982-05:002011-12-16T02:10:36.982-05:00Happy, happy birthday, Wysdom!!!!!!Happy, happy birthday, Wysdom!!!!!!Lisahttps://www.blogger.com/profile/16749431284192436424noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-19990030720618247232011-11-28T19:28:47.648-05:002011-11-28T19:28:47.648-05:00Happy Birthday Wysdom!! Hope it's wonderful a...Happy Birthday Wysdom!! Hope it's wonderful and magical.<br /><br />Sasha, you couldn't have said it better. While, initially, the dx of Down syndrome is kinda scary, it most certainly has been such a blessing. I'm sure people think we're nuts saying that and assume we're saying it to make ourselves feel better, but we are speaking pure honest truth.Mehttps://www.blogger.com/profile/13519879301526309089noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-20863097905226060922011-11-28T14:29:34.251-05:002011-11-28T14:29:34.251-05:00Happpy 3rd birthday Wisdom! Hope you enjoy yourse...Happpy 3rd birthday Wisdom! Hope you enjoy yourself!Rochellehttps://www.blogger.com/profile/11866781944242761406noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-73373598678818383842011-11-28T12:43:44.618-05:002011-11-28T12:43:44.618-05:00I remember this day so well! It was a blessing to ...I remember this day so well! It was a blessing to be present for Wysdom's birth and I have enjoyed hearing about your adventures through this blog. Wysdom certainly makes the world a better place and it fills me with so much joy knowing that he is as strong and happy as he is. :)Bethhttps://www.blogger.com/profile/04741307051569694243noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-38543194661166469612011-11-24T01:09:51.859-05:002011-11-24T01:09:51.859-05:00SO good to read your words :)SO good to read your words :)Lisahttps://www.blogger.com/profile/16749431284192436424noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-80423493355152465982011-08-16T00:01:14.855-04:002011-08-16T00:01:14.855-04:00Hi
My name is Jenna and I came across your site. ...Hi<br />My name is Jenna and I came across your site. Wysdom is an amazing, courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I love his cute adoreble smile! I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.comJennahttp://www.miraclechamp.webs.comnoreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-82889219518303423922011-06-28T00:42:10.457-04:002011-06-28T00:42:10.457-04:00Peaches Ledwidge,
Thanks so much for stopping by ...Peaches Ledwidge,<br /><br />Thanks so much for stopping by and for your comments. Wysdom is such a joy in our life that I just love sharing our story:)Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-55912505917271479392011-06-27T07:38:17.130-04:002011-06-27T07:38:17.130-04:00Glad he's doing well. Thanks for sharing Wysd...Glad he's doing well. Thanks for sharing Wysdom's journey.Peaches Ledwidgehttps://www.blogger.com/profile/13406881743264774589noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-15006023109726733782011-06-24T03:11:29.299-04:002011-06-24T03:11:29.299-04:00Thanks Rochelle and Kim,
Yes he is doing pretty w...Thanks Rochelle and Kim,<br /><br />Yes he is doing pretty well. I wrote this last night and this morning he has a cold. Go figure. Otherwise he is doing great considering and he is just so darn cute!!Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-68767607651956833172011-06-23T21:29:50.011-04:002011-06-23T21:29:50.011-04:00Wow! Wysdom looks great and sounds like he is pro...Wow! Wysdom looks great and sounds like he is progressing like a real champ! Glad to read that all is going so well. :0)Kim Reeshttps://www.blogger.com/profile/04711747372107048991noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-2146015614592161132011-06-23T05:57:49.899-04:002011-06-23T05:57:49.899-04:00Sounds like he is doing really well. Yahoo!Sounds like he is doing really well. Yahoo!Rochellehttps://www.blogger.com/profile/11866781944242761406noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-12583910823850304282011-06-23T00:21:09.276-04:002011-06-23T00:21:09.276-04:00Thanks Connie for your comment. We just went throu...Thanks Connie for your comment. We just went through a second test just before I got your comment. He probably didn't get a good reading on this either. We will just see what happens next. Thanks for your tips, I love that you can get a monitor with musical alarms. I will keep you posted.:)Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-18355350196472553902011-06-20T09:10:08.959-04:002011-06-20T09:10:08.959-04:00If he ends up needing it ongoing, see if he can we...If he ends up needing it ongoing, see if he can wear an adhesive wrap-type one on his foot, wrapped around with the red light part on top and the sensor on the bottom (wrapped near the outer edge of the foot). He looks sort of small, but maybe not. Otherwise, I agree the toe is good. We found that the brand of pulse ox we had was good for having sensors that really lasted a long time, and the alarms were musical, and not scary blasts like most. They still woke us up, but not to a scary sound. I can tell you about it if you need that. Hope you don't need it, but if you do, it's a blessing. :)conniehttps://www.blogger.com/profile/08675708151247378703noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-58877786374754272052011-05-05T10:54:12.872-04:002011-05-05T10:54:12.872-04:00Thanks Bitt for your comment. Yes I guess the end ...Thanks Bitt for your comment. Yes I guess the end results is what we are after. For the sleep study I know it will be crazy for him. I am so not looking forward to that. Keep me posted on how it goes for you.:)Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-14446303964235894962011-05-05T01:08:38.671-04:002011-05-05T01:08:38.671-04:00I can't even imagine how hard it was to get an...I can't even imagine how hard it was to get an oxygen monitor on him. I hated it and it was hard to sleep. But if he has apnea it is good to know.bitthttps://www.blogger.com/profile/07897733975604744859noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-35175503820255569152011-05-04T22:08:58.126-04:002011-05-04T22:08:58.126-04:00Hi Krista,
Thanks for the comment. Hope all goes ...Hi Krista,<br /><br />Thanks for the comment. Hope all goes well. I know Wysdom is probably high urgency. However our pedi would not send us. So we had to switch pedi's and now we are starting the process.Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-20508179270828240132011-05-04T21:38:34.848-04:002011-05-04T21:38:34.848-04:00We are just ahead of you in the process. Ella had ...We are just ahead of you in the process. Ella had the sleep monitor and in just over a week we will go for a sleep study consult and then a sleep study....She seems to sleep well to me, but they have her as semi-urgent...who knows.Kristahttps://www.blogger.com/profile/02088954144281629542noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-77487768359102739232011-05-04T13:15:55.521-04:002011-05-04T13:15:55.521-04:00Erin,
Thanks for your comments. The placement on ...Erin,<br /><br />Thanks for your comments. The placement on the toe sounds like a good idea. For whatever reason they wanted it on his finger. Did you get the answers to your sleep study?<br /><br />I have heard that the sleep study is not fun. I am not sure how we would even do it as my son does not sleep in a traditional bed.<br /><br />Thanks for sharing. It helps when you hear how other's are doing.Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.com