Wednesday, September 9, 2009

Its all about the eyes...

'It's 3 am and I am up feeding Wysdom so I thought this is a good share some updates. It has been crazy busy as usual. Today we went to an eye appointment. This is our first eye appointment out of a slew of eye tests coming up to see what is causing Wysdom's eyes to cross. They also want to determine the cause to the Nystagmus or shaking of the eyes. We met with a lovely Neuro- Opthamologist today in Stoney Creek, about 1 hour and a bit away from home. (my husband thinks it is funny that I called him "lovely"-okay so he was very nice and good looking. To be honest though, I thought he was lovely because he explained things very well and I love that! ) First just let me say that Wysdom has made us into travellers. This is our 5th hospital that we attend for his care....we are starting to get around. Today Dr. Rodriguez looked at his eyes and concluded that in his opinion the optical nerve looked good. The size and the colour of it looked like what he would expect it to. This is good news. He also got to look at the retina and he thought that it looked okay too. We still have another test for the retina so that is not the final say..but so far it looks good. So he will keep Wysdom's file open, but he thinks that we will not have to see him again. Next stop for Wysdom in regards to his eyes is to get a cat scan. That will be coming up in October. I am so not looking forward to that because they have to put him to sleep for it and they may want to intubate him. Then we have 2 other test for his eyes in the near future before they decide if and when he will need eye surgery. To be honest I was freaking out a bit because....come on really we just got finished with heart surgery a couple of months ago. I innocently thought that things would cool down for a bit before we got thrown back into the fire so to speak. When I heard at our last appointment that Wysdom was going to need eye surgery I felt sick. However today the outlook seems a little better and if eye surgery is needed it may not have to happen until a little later. They are guessing anywhere from 6 months to 2 years and that's just an estimate until we get all of the test results.

6 comments:

Googsmom said...

Did they offer patching the eyes first? Just curious :)
{{{{{HUGS}}}}}

Hector and Jennifer Varanini Sanchez said...

We were told Joaquin would need eye surgery as well at one year but we have decided to hold off on that as long as possible. Especially since the surgery seems to have to be repeated many times in their lifetime and why rush it. As a result, Joaquin's eyes are getting better and better. We did some patching initially and now he is using each eye intermittently and is getting better and better at organizing his sight. The crawling has really helped this. Good luck to you and your little guy!!!

kangfamily said...

We will keep our fingers crossed for Wysdom's eyes. All the tests and possible surgeries are very overwhelming I'm sure. He is one tough little guy!

Beverly said...

keep you all in our prayers!

Stevenson Family said...

Let's hope everything works out for the best and the surgery won't be needed. Pretty crazy the things we have learned since our little men have entered our lives. Keeps us on our toes!! I'll be praying for you guys.

Brandie said...

Goldie has nystagmus. (Go to my blog, click on nystagmus on the sidebar to learn more) She sees Dr. Hertle in Pittsburgh. We did not have any scans done because her optic nerve is smaller than normal, causing her nystagmus. Please email me if you want more information. We learned more in 5 min from Dr. H than we did in 2 years with the ped. optho. He is the expert and people come from all over the world to have him do their eye surgery. He gave us a book called "Navigating Nystagmus With Your Doctor" by Edie Glaser. I think its available at www.nystagmus.org It gives information about the different types of surgeries available and expected outcomes. As a mom, I can tell you I worried A LOT about Goldie's vision. But, it has improved so much in the last year, since she started walking. I am constantly amazed by how well she is doing. We've even been told she may not need surgery after all. If Wysdom's optic nerve is normal in size that is even better!