I have been reading a lot lately. Well truth be told, I don't necessarily read through all of the books but glance through them and read what I think is relevant. Time is of the essence and my late night ng feeds allow me for about an hour and a half of little leisure time while I stay awake and watch Wysdom feed.(reflux:}) I usually blog or read. A couple of weeks ago I was feeling really overwhelmed and there are a couple of things that I do when I feel this way. Firstly I usually blog about it, take a bath and get some new inspiring books to read. So while looking for some new books I came across this one. Married with Special-needs Children. A couple's guide to Keeping Connected.
As I flip through this book I am interested in several of things. Definitely the part about the parents comments about their triumphs and struggles and how they remained strong in their marriage is of a huge interest to me. I am also drawn to how couples make more time for themselves in the midst of a busy demanding schedule. This got me thinking about everyone else out there with a child with special needs and how they are doing in their marriages?
My husband kind of chuckles when he sees this newest book that I have brought home from the library. Really we are not in a bad position right now, but it always pays to be a little proactive don't you think? We don't have a lot of time for ourselves to go out on a date, or even have a non child related conversation. Albiet, we have a 3 year old thrown into the mix that keeps us busy too, so it's not all about Wysdom. It is the combination of them and throw in about 4-6 appointments a week and there you have our agenda. If we keep going as hard as we have for the last 2 years in regards to our schedule and levels of stress it might definitely put some wear and tear on us. Another really interesting thing is that most of the blogs I follow focus on children from birth to about the age of 5 or 6. With the exception of a few, I don't really have much interaction with parents that have children who are in their teens or adulthood. So I have no idea what it is like for parents of a teenager or adult with down syndrome. I wonder if things have settled down and what is life like for them?
Anyways, this is just what is on my mind these days. I would love to hear about your stories and about your marriages and what you have done to make them work in the midst of many appointments and numerous hospital stays and visits?
2 comments:
We are lucky to have parents that live close. They come and stay with Gabe at the hospital around dinner time so Justin and I can go home and eat a meal together and remember that we are married and have an actual home outside the hospital. I'm hoping we'll continue to make time for each other once we eventually get out of here and I go back to work.
We have only gone on one date with out Noah in almost 8 years. I think it would be nice to do it often but then we just are comfy always being together. I feel we have a good bond, love and respect each other and we feel very blessed to be Noah's parents.
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