Finally we passed our first hearing test!!! This is a big thing. We have failed numerous tests. Actually way to many to count. We have had tubes in since October last year and still we were failing. We go for the hearing test....back to the ENT....then so on and so on and so on. It has been kind of crazy actually.
This week we finally had a plan developed. Get his ears cleaned and then do a test ASAP so the wax doesn't have a chance to build up. It seemed to work. So Tuesday we drove an hour each way to get Wysdom's ear's cleaned. Fun...NOT. Then today we had the hearing test. Okay all was not perfect with the test. They stick this little thing in his ear and measure the output. The output is still not where it should be. It is suggesting fluid or that the tubes are still somewhat clogged. They really can't say as Wysdom will not allow them to look to closely. MIGHTY BUT STRONG COMES TO MIND!!!.
So part of the test is questionable. However when we moved to the behaviour test he did quiet well and PASSED. He responded well. If you have never done this, it is when they put you in a booth with your child and have speakers making different levels of sound. When Wysdom respond appropriately by turning his head towards the noise...a toy claps or plays the drum. Wysdom turned his head and waved at the toy. So I am happy for the time being. It seems the hearing loss fluctuates due to fluid and not likely a permanent loss.
The audiologist was honest and said we will probably be back for more test with her in the future when language is supposed to develop and she said that we would be followed more closely then. As well we are to keep our already booked appointment for another test in October. So yes I can be happy, but this is an ongoing issue. Honestly I am already aware of that, but I still can be happy with a pass today. Yeah one for WYSDOM!! I am sure many of you have stories to share about your ENT/Tubes or lack of tubes that you could share too.
7 comments:
YEAH Wysdom! Way to go on the hearing test. WOO HOO!
so happy you had a "pass" today on wysdom's hearing tests - even though everything was not 100% perfect on the oae test. we have definitely had ongoing struggles with hearing and fluid in whitney's ears, and just prior to her second set of tubes being placed she delayed surgery by eating paper from the wrapper of her hospital socks!!! http://acbyron.blogspot.com/2010/03/whitney-paper-eating-troublemaker.html
hopefully they can continue to test to make sure that the temporary hearing loss that appears to be from fluid does not lead to permanent loss. i read somewhere that the cause of permanent haring loss in children with Ds is actually from undiagnosed fluid in the ears. that is why i have been trying to keep on top of this hearing issue - as obviously you have been battling, too. yeah for a pass today :) here's to many more passed hearing tests!!!
Hi
SO glad you passed the test. Luke had his yesterday and did not pass. They couldn't get a seal for the ABR, but he has no fluid in his ears and did not hear the higher frequencies well. So he has to be retested in 3-4 months and hopefully he'll pass then- maybe he got bored. Here's hoping.
YEAH that is wonderful news. I'm glad you got a pass!! We did switch off of formula to something called compleat pediatric. It is a bunch of puree foods, vitamins & minerals. He has done AWESOME on it. It was like a night & day difference. How is Wysdom doing with foods?
I tried posting a comment earlier but not sure if it went through or not. We are SO EXCITED you got a pass on the hearing test!! We have had two done so far. We switched Beau's food from formula to Compleat Pediatric. It is a blenderized puree foods, vitamins, & minerals. He has done AWESOME on it! How are you guys doing with foods?
good news on passing the test. Noah passed his last test as well after he got his tubes put in. hope all is well!
Wahoo Wysdom! Hearing tests always come back looking bad for P, I always hope but I've getting better at seeing the graph and knowing what's up. I'll have to remember your tricks maybe that will work for us!
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