Monday, April 5, 2010

More than surviving....we're thriving

Okay I don't want to jinx anything, but things have been going pretty well for Wysdom. He has joined his first baby group. I know it's late but this is the first time that he hasn't had any pressing medical issues. We still have many issues and things to do however nothing that prevents us from a little FUN. So Tuesday's we head off to Kid's Ability and join several other moms for some songs, books and puppets and toys. It has only been two weeks, but Wysdom loves it!! This Friday he will also join a music therapy group which we are really excited about.

Physical therapy has been a challenge but we are reaping some of the hard work. Wysdom despite all of his medical issues is continuing to do well. He has now mastered sitting-he did this about a month and half ago. We are really proud of him for this achievement. Can you believe we were once told that they were unsure if he would be able to sit. Although he does not go on his tummy now since the g tube, he has still developed strong muscles in some areas of his body. We are now working on crawling or rocking on all fours (with tummy of the ground). Last week we tried standing for the first time too. The therapist used an apparatus called the "stander". Okay at first I was a little afraid and skeptical. They had this old piece of equipment that look quiet torturous. However it worked out really well and allowed him to start using more of his leg muscles. We are going to focus on his standing at home now. We are so excited to move forward with the next goal and we can tell Wysdom is too.

Somehow withing the last month or so we have also found out the Wysdom is more of a social butterfly than a shy little guy. He has blossomed and is open to so many more people. He is laughing and clapping and spreading lost of joy. One of is favorite things now is to take a car ride. We can see a "Road Trip" in the near future.

We are having a lot of fun and just wanted to share some of the good stuff that happens too. Yes we still are busy with cardiology appointments, eye patching, and feeding issues, but somehow things seem to be progressing.

We have had one big feeding assessment done about 2 weeks ago by Sara from Talk Tools that we are grateful for because now we have a plan for Wysdom's feeding and speech issues. As well we have some big appointments coming up this week too. Our big cardiology appointment is on Thursday and we are going to our first Down Syndrome Clinic in the morning. So yes it is still really busy...but we are more than surviving!

11 comments:

Beverly said...

so happy things are going well. keeping all of you in our prayers. Everything sounds good and he is working hard and doing so many new things.

Tina said...

Hey it's so great to read abput Wysdom and everything wonderful that's happening with him. I hope things keep getting more exciting for him. Music therapy sounds fanstastic I am sure he's going to have fun there. How did the assessment with Sara RJ go? I had contacted her about Saira and she advised me on what package to purchase from Talk Tools. I am in the process of doing all that and can't wait to start working with Saira on her speech and feeding.

Erin said...

So happy to hear that you are all doing well! Good job Wysdom on sitting! It is always nice to see progress!

Lacey said...

A few posts back I talked about Jax stander and put a lot of pictures up. It can really be a great tool!

Kim Rees said...

Hi Sasha! So glad to hear that Wysdom is doing so well! Lily just recently started sitting up too! It's so great to finally see some progress. Keep up the good work! God Bless!

stephanie said...

Things sound great! Wysdom is doing so much! And I bet that music therapy is a hit too. Emmie started one too. Loves it!

Tara said...

Thriving is great!!! So happy for the good report. I must say that I'm really encouraged that Wisdom is starting to be more social. Eon rarely/never smiles at anyone outside the family. I wish he were a bit more charming to strangers. :)

Meghann said...

Wow! You really are busy, but it should like you're doing lots of wonderful things! YAY, WYSDOM!!!

mauimom said...

What an uplifting update about Wisdom! I have been out of blog land for quite awhile now, so it is great to know that he is doing well. What a sweet little guy!

Colleen said...

The stander is a great tool. Isaac loves going in his. I'm so glad to hear that you are having happy days!

ABandCsMom said...

Very happy that things are going so well. Can't wait to see some pictures of the little guy!