THANK YOU

Thank you for everyone for your prayers and support during this difficult time. I am overwhelmed by the support and love from everyone. I could list names of people to thank, but I would be afraid that I would leave someone out. So again just a big thanks.

Here is a poem that I wrote for my mom at her funeral that I thought I would share with all of you.

A mother like no other

Lots of people say that they have a “great mother”
However we had a mother, “like no other”
A mother who loved with an open heart
A mother who sacrificed and worked hard for her children
A mother who laughed, danced and sang everyday
A mother who loved her grandchildren so much and proved it !
A mother who loved to garden and go on road trips to the beach every summer
A mother who fought for her children and made lots of sacrifices for them
A mother who’s spirit radiated and was felt by many
A mother who was often told that she was requested to be a “second mother” to all of our friends
A mother who had whip cream and food fights often and we have the pictures to prove it
A mother who loved endlessly,
A mother who cherished her grandchildren every day.
"A mother like no other" who will be missed greatly


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FYI

I shall be returning to the blogging world shortly with some updates on how Wysdom and Blyss are doing. So stay tuned as I try to get back into blogging.

Sad News: My mom lost her battle

I have some sad news. My mom who was battling with pancreatic cancer passed away on Saturday. Her health declined very quickly early last week. Our family is devastated, especially her 8 grandchildren. She stayed at home and passed away in the comfort of her own house surrounded by family.

I was fortunate to see her very often and spend time with her daily. Both my sister and I were able to share some time with her that we will cherish every day.

Her funeral will be held on Wednesday. Thank you everyone for your prayers and support over the last couple of weeks. A special thanks to all of our family members that stayed with her and helped her through out her battle-you know who you are. We could not have done this with out you.

Rest in peace mom. We love you.

My hero's: Wysdom and Mom

Can I just say that Wysdom is my HERO. He has been through a lot in the last month and a half but he just keeps on smiling and fighting his battles as they arrive. I am so proud of him today. We went to the hospital AGAIN( yes I know you must all be so sick of me telling you this) I will tell you because that is all I have to talk about as it is my reality right now. Anyways he had some g tube issues over the weekend and ended up getting some granulation tissue taken care of today. Taken care of sounds much better than burnt of with Silver Nitrate. He handled it like a champ. Oh yes he screamed and cried his head off. I knew this was going to be the case as one mother on the BBC had shared her story with this experience with me. After about five minutes he calmed down and gave us some big smiles and was playing like usual.

He is so strong and has gone through so much and continues to thrive. Even with all of the tube problems we just found out that he now weighs 21 pounds and change. He is growing and gaining weight at a good rate putting him at the 75% on the Down Syndrome Chart. So yes he is my HERO!

This week Wysdom has mastered puckering up and showing me that he can give me a kiss. Since I am part Polish, I say it to him in Polish and he just puckers up and plants one on me. Through all of the trial and tribulations we are having fun with him. We are well into our natural routine that I blogged about earlier. He is taking his probiotics and vitamins well. Really he should have been on this a long time ago, but for whatever reason I felt quite hesitant. I am guessing probably because he has had so many medical issues that I felt afraid but in reality I am sure it is the best for him.

Wysdom also performed on cue today too. We went to visit my mom, who is very ill and is just hanging on right now. She is a sleep for most of the day. However today she was able to see Wysdom smile and wave at her. He even tried to give her a kiss. This was a great joy to me to see her smiling and responding to him. I know that she loved coming to our house to play with him and loves him dearly. Anyways that is about all I can say as this is bringing me to tears.

So the plan is for Wysdom to heal from his g tube and get him back into his activities which he has been banned from for the last month or two. We actually banned him from going on his tummy as to let the tube heal. He still finds his own way once in a while. So hopefully this week he can be free to do whatever.

We are also having a meeting in the morning with our OT, PT and a vendor. We are hoping to find a sleeping arrangement for Wysdom. Something that is elevated but comfy so that he can have a better sleep. Right now he spends most of his time sleeping in his bouncy chair. His crib doesn't do the job. Even with it being elevated it doesn't seem to work for him. His playpen sometimes works if it is not around feeding time. So the poor little guy sleeps in his bouncy chair. So the vendor will be bringing some wedges and sleeping items. Wish us luck!

The plan for me is to spend what little time I have left with my mom. She is a fighter but this battle is a hard one that she is not winning. Everyday right now is such a gift of time. So please keep us in your prayers and thoughts through this difficult time. I also just wanted to send out some love to the several moms that have their little ones in the hospital right now from illness and also for heart surgery. My thoughts and prayers are with you too.

Thanks everyone for your prayers and wishes.