Wysdom seems to be doing a lot better. After I wrote the post we tried some of the suggestions that everyone gave us about venting and taking some of the pressure off of his stomach. I left the tube open for a while and he seemed to be more comfortable. We also took milk out of his stomach when he was uncomfortable. To me it seems like he takes a long time to digest it. We were able to cut back on the Tylenol and Advil and then we restarted feeds. We did his first feed at 30mls and hour. It went real slow working him up to his regular feeds of 135mls...but we did it by the end of Saturday. Albeit it is at a different rate that we kept adjusting. We started at 30 mls and worked our way up. He is now at about 120mls per hour and we will still try to move that up to his regular of 135 per hour. We also got a chance to talk to a doctor on call who verbally increased his doses of reflux meds to his current rate. So we upped those as soon as possible.
What a crazy 2 days that was. We really are not sure what happened but we are guessing two things. We think that he may have been really constipated and as mentioned by some of you, that the milk had no where to go except up and out. The second thing was the piece of whatever it was that we found in his milk that he threw up. It was kind of crunchy and sharp and maybe that was stuck in his throat and kept him gagging and clearing his throat. We normally do have lots of reflux but he doesn't usually clear his throat like that. Once the foreign substance came out his gagging reduced. We are not sure what it is. We watch him like a hawk because of his reflux so we don't think it's something he swallowed. My mom thought it resembled crunchy blood? Who knows? I thought maybe a part of the g tube? Anyways he also ended up pooping several times later that day so he got some relief. All of the intense gas that he had as well has reduced. The gas was so strong that it would push the pump out of the g tube. We are using the peg tube right now and he hasn't had a fundo but we still need to vent quite a bit. I am going to call our surgeon and talk to him about this. Right after surgery we had talked to him about the hopes that the g tube would reduce the reflux and he stated sometimes it increases it. Well wouldn't you know it? I think it has. He is supposed to be one of the top surgeons.
I have to thank all of you for your thoughts and prayers and my mom who is sick herself with some undiagnosed pain but came over to do all my dishes and clean my house and also take Blyss out for a few hours. I am so thankful for all you that think of Wysdom and send good thoughts and energy our way.
Wysdom has seemed to catch the cold that Blyss has, but it looks manageable right now. I will keep you posted if anything changes. Ah....I can breath now!!! What drama. Hoping for a drama free week. Next weekend is he is one year old and I hope that he is feeling good by then.