Wednesday, November 10, 2010

We Are Still Here!

I am still here. Wysdom is still here!!!I am personally bruised and beaten down by life and the loss of my parents ...but I am still here. I know I have not been on my blog for about 2 months now but I just wanted to thank you all for your comments and prayers that you posted for our family. Special thanks to all of our friends and family that traveled from out of town to come to the funeral. As well as my old school friends that showed up. Thank you. Your support has been great.

Over the last month my sister and I have emptied my parents home and put it up for sale a couple of weeks ago. Now that the house is on the market we have gained some of our own personal time back and thus I have a chance to slowly get back into blogging and catching up on your blogs.

In all this mess and grief that our family is going through with the death of my mom and dad this year...Wysdom still seems to amaze us. Especially in the last 2 months since my dad's death, Wysdom has thrived(I just haven't written about it). Blyss is thriving too. The two biggest things that have happened is that Wysdom has started to become mobile and Blyss started JK.

Wysdom is progressing so much in the last little bit especially in his gross motor development. Yes he is very behind of where he should be....but we don't care. He has had the challenge of this g tube delaying him even more than just his low tone. For s0o many months we have purposely kept him off his tummy due to his numerous g tube infections(as many of you know). We have in a way been stunned by his development in the gross motor arena. Low and behold in the midst of my grief....he thrives.

Imagine a child that spends almost his entire day in a bouncy chair. Just lounging and unsure of his body movements let's say. Then imagine a child that one day decides to flip himself out and start to explore. Start to explore by rolling and sitting. Then bum scooting backwards, and then a little forwards. Then doing some contortions and switching from sitting to tummy by doing the splits. Yes...the PT(physical therapist) or any PT may not like his technique, but everyone loves his motivation, drive and creativity. He is learning so fast everyday and is truly amazing us. He continues to teach himself how to move around. We are thrilled that he is starting to crawl and be mobile. He is starting to become interested in putting pressure on his legs and wanting to stand on our lap. This is huge for us!! With lots of effort and his motivation we hope he will start to stand.

To be honest I have often commented that my father is sending Wysdom some energy or helping him out some how. Truly it was at the sane time as my father's death that Wysdom instantly started moving around. Coincidence or divine intervention? I am thinking divine intervention. Both my parents loved Wysdom beyond words. My dad was really interested in if he was going to be able to move around in his last few months alive. So maybe Wysdom is getting a little help from his two very special angels watching over him now.

On the weekend we were able to go to our third annual Buddy Walk. Pics will follow. I lost my camera so I had to use an emergency disposable so pics will take a little longer to be posted. Anyways, we had a great time and for sure both Wysdom and Blyss had a blast.


heather said...

I agree that it's divine intervention. I'm so sorry to hear about your father passing away too. I missed reading about that. I can only imagine what you are going through. What a difficult year! Sending lots of love and prayers your way!

Tina said...

Happy to see you back and hope to hear more often from you. I am so excited for Wysdom and this new found mobility that he has found, and who says it's not divine intervention. Your parents are always in your presence even if you can't physically see them. I hope you have been able to find some peace as well in these last 2 months. It can't be easy but family gives us the strength to carry on. Would love to see some pictures of the kids. Many hugs

Stephanie said...

Sasha, I'm so sorry about you Dad. I didn't see that post.

It sounds like Wysdom is doing some pretty amazing things!
I do believe your dad is giving Wysdom a little boost from above, and your mom too! They are still his grandparents and now have a whole new way to spoil him!

again I am so sorry for what your family has been through this year.

it's good to see you back again.

Beth said...

Go, Wysdom, go!!! You can do it!

Jill said...

nice to see you back :)

Rochelle said...

So glad to hear from you. Thankful the kids are doing SO well! YEAH! Keep up the great work with both of them.

Cathy said...

Thanks for the update. Good to hear all the things going well for Wysdom. You've had a really tough time...((HUGS)) to you and your family!

Gabriel and Alyssa said...

Glad you're back!

Alaina and Kyle said...

Oh it is so good to see you back on here! We were thinking about you guys last night and wondering how everyone was doing. I'm so glad Wysdom is developing so quickly!! That is so awesome. We are still in your same boat...Beau likes to take his own sweet time!! Still praying for your family!!

Meghann said...

It's nice to hear from you Sasha! :) My heart breaks for your loss. Going through my father's home was one of the hardest things I've ever done. I hope that peace finds you and know your parents are still watching over your beautiful family! Yay for all the thriving!

Canadian Down Syndrome Cooperative said...

Hi There,
I found your blog in the Traveling Afgan journal. It is so good to connect. I am Krista from Calgary AB but I am commenting on behalf of the Canadian Down Syndrome Cooperative. An attempt at getting a nation wide conversation going.