tag:blogger.com,1999:blog-3071347216867881592.post4328773217484985873..comments2023-10-25T08:34:20.928-04:00Comments on THE WONDER OF WYSDOM: We're going naturalUnknownnoreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3071347216867881592.post-51957189333776979202010-01-30T22:48:07.674-05:002010-01-30T22:48:07.674-05:00you sure are busy. hope all goes well with going n...you sure are busy. hope all goes well with going natural. Im sure it will.Beverlyhttps://www.blogger.com/profile/06839002672133730210noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-26635138548303286192010-01-30T10:40:50.693-05:002010-01-30T10:40:50.693-05:00So sorry you are still experiencing problems with ...So sorry you are still experiencing problems with the g-tube. Is Wysdom going to be getting a mic-key button any time soon. It might be easier on him. Also our ENT keeps asking me questions about Lily's sleep patterns but I haven't noticed any problems so far. Sleep apnea is such a complicated and serious problem. Lily is also on steriod nose spray as well but we just started it so we will see how that goes. As for the natural stuff I think it is great! More power to ya girl! I'm sure you will share all that you find with us. LOL!Kim Reeshttps://www.blogger.com/profile/04711747372107048991noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-829100983697278192010-01-30T01:55:15.730-05:002010-01-30T01:55:15.730-05:00Have no feeding tube experience but we have had is...Have no feeding tube experience but we have had issues with reflux and sleep apnea and thought I would share...but Wysdom is younger. My son, Evan, had obvious apnea when he was about 18mos. old. We noticed it when we were on vacation at the beach and sleeping together, he would pause breathing, then change position and start breathing again. The dr. tried him with a steroid nose spray and it did help him. It takes a couple of weeks to reach maximum effectiveness, but we were able to not have surgery. When he got to be about 4 his tonsils were very large and we actually scheduled surgery but had to put it off for several weeks. When we came back to recheck they had shrunk back down some and we decided to wait and see again. He's 13 now and never had to have them out. He does not have Down syndrome. Jessie, 8, with DS, has never been a great sleeper. We felt that she had reflux when she was an infant and she took Zantac, which helped some. She changed meds. when she got older. She also had ear issues but we could never be sure if the two together were all the cause of her restless sleep. She was 5 or 6 when she began to have very obvious apnea, which pretty quickly became to a point that it really scared me and I got no sleep until she had surgery. Before surgery, ENT dr. felt her tonsils weren't all that large but that her mouth was small, but felt her adenoids must be large for the difficulty she was having breathing. We left it that for sure adenoids would come out and he would decide about tonsils once he saw the adenoids (during surgery). He decided after seeing the adenoids that he believed they were large enough to possibly be the sole cause of our problem. He took out only her adenoids and she has not had an obvious apnea problem since she recovered from surgery. I was relieved as tonsillectemy is much tougher and scarier surgery than just the adenoids. I did worry that she might eventually have to have the tonsils out...but so far so good, and that's been a couple years. She still isn't a model sleeper but better,and has no obvious breathing issues. I've read a study that says even kids (with DS) whose parents notice NO sleep abnormality have a huge percentage that turn out to have apnea when they have a sleep study, so I wonder if we will end up doing that later. <br /><br />I know Wysdom is much younger, but just in case there was anything in my story that might help, I wanted to share. You might give the nose spray a try, I don't think it could hurt, it didn't significantly help Jessie, but it did my son, might be worth a try. Thinking of you,<br /><br />JosetteJosettehttps://www.blogger.com/profile/03686244697972716604noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-90269613414307318972010-01-29T18:33:00.590-05:002010-01-29T18:33:00.590-05:00Will he eat yogurt? Our nutritionist suggested th...Will he eat yogurt? Our nutritionist suggested that for Aubrey, especially when she is sick to help balance things. I usually just give her vanilla.<br /><br />Don't stop looking for answers. Be strong, you are his advocate and no one else is going to look for answers.Rachelhttps://www.blogger.com/profile/16915395779182043474noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-13853408667402135702010-01-29T13:53:45.336-05:002010-01-29T13:53:45.336-05:00Other than oxygen for the apnea, my suggestion wou...Other than oxygen for the apnea, my suggestion would be to elevate the head of his matress and put a rolled up washloth under his neck to push his jaw forward when he sleeps. Those are some tricks to keeping his airway as open as possible. Also, if you are holding him and he is sleeping have him lay belly against your chest with his head resting on your shoulder. good luckGabriel and Alyssahttps://www.blogger.com/profile/09531553431946122385noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-81686929809364643372010-01-28T18:55:24.074-05:002010-01-28T18:55:24.074-05:00I thing going the natural route is a great step in...I thing going the natural route is a great step in helping Wysdom stay healthy! I give all my kids probiotics and a dha supplement. Goldie also gets a vitamin supplement. The breathing/sleep thing can be very complicated. I think its usually a combination of things that keep them from getting a good nights rest. Its taken us a long time and lots of trial and error to figure out what it takes to get a good nights sleep around here!Brandiehttps://www.blogger.com/profile/01704697731192764110noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-74649084607178132522010-01-28T16:58:26.033-05:002010-01-28T16:58:26.033-05:00One of my all-time favourite poets is Rumi. He has...One of my all-time favourite poets is Rumi. He has a saying, "Wherever there is a pain, there goes the remedy." I think that trying a more natural approach with Wysdom, by drawing on the healing arts that Nature hands down to us is not only more in keeping with your personality, but will ultimately help you to feel like you are actively participating in your baby's healing. You are the world's best mother, Sasha. I am in awe.Bethhttps://www.blogger.com/profile/04741307051569694243noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-79766866399503454912010-01-28T12:21:36.799-05:002010-01-28T12:21:36.799-05:00Leave it to kids to brighten up even the darkest d...Leave it to kids to brighten up even the darkest day:) Very cute Blyss! I hope all goes well with your "au natural" search! It's so frustrating when we don't get answers (expecially those we want or need). Keep your head up Sasha, tomorrow is another day:)Kellyhttps://www.blogger.com/profile/02643251885429921088noreply@blogger.comtag:blogger.com,1999:blog-3071347216867881592.post-86728757619527233222010-01-28T11:25:30.699-05:002010-01-28T11:25:30.699-05:00wow, what a full two days you had. i hope the nat...wow, what a full two days you had. i hope the natural thing helps:) when max was a newborn he had a hard time sleeping he snored a lot, his dr. recommended sleeping up right in his car seat, it helped, but i think maxs thing was more with his tongue but it did help, i have heard the ent say that about waiting for tonsils and adenoids removal being better to wait till they are a little older than our little ones. thanks for the update post on wysdom:)Sara Phttps://www.blogger.com/profile/16962051517297091923noreply@blogger.com